CreakyJoints Leverages Patient Voices to Redesign and Relaunch the ArthritisPower Research Registry
UPPER NYACK, NY–(BUSINESS WIRE)–Creaking jointsthe international digital community for millions of arthritis patients and caregivers seeking patient-centered education, support, advocacy and research, and part of the non-profit organization Global Foundation for Healthy Livingrevived its success ArthritisPower Research Registry, with Version 3 of the free app redesigned to improve overall usability and increase the volume of learning resources available. In 2021, ArthritisPower grew by 15% and now has over 35,000 consenting users who track their experience with arthritis and other rheumatic diseases, share this data with their healthcare providers and participate in research studies volunteers in English and Spanish. Over the past five years, ArthritisPower research has been presented annually in more than 70 conference abstracts at major national and international rheumatology scientific meetings and published in more than forty-five peer-reviewed articles.
“ArthritisPower is a powerful tool that our community can use to track their experience with symptoms, new or adjunctive treatments, and complementary therapies, while contributing to our understanding of arthritis by participating in voluntary surveys and studies. in the app,” said W. Benjamin. Nowell, PhD, director of patient-centered research at the Global Healthy Living Foundation and principal investigator of ArthritisPower. “This new and improved version of ArthritisPower will help each person select and prioritize the areas they most want to track from dozens of options – whether it’s pain, physical function or fatigue. – and to better connect with our CreakyJoints community by accessing training articles and stories about peer patients in the app.”
The ArthritisPower Research Registry app has been redesigned with the patient experience in mind. CreakyJoints interviewed users and then conducted confirmatory market research to ensure that the planned enhancements met the needs of the CreakyJoints community. Following user research, patients were then included at every stage of the process – from planning and design to post-launch validation testing.
“At CreakyJoints, we are committed to putting people with arthritis at the center of their own care and that includes ensuring that our tools and resources are designed with their specific needs in mind,” said David Curtis, Director technology and data service. at the Global Healthy Living Foundation. “Feedback from our patient community has determined how we have improved the app and we believe most users will find the interface easier to use and we have increased the volume of supportive educational information they can access between filling in their assessments.We are truly proud to offer ArthritisPower to our community.
ArthritisPower Research Registry is available for free in the Google Play and Apple app stores. It can also be used as a desktop computer application. To visit www.ArthritisPower.org for more information.
Created by Creaking joints®, ArthritisPower® is the first-ever patient-centered research registry for joints, bones, and inflammatory skin conditions, as well as arthritis and rheumatologic manifestations of gastrointestinal (GI) tract and skin conditions. With tens of thousands of consenting arthritis patients, the free ArthritisPower mobile and desktop app allows patients to track their disease and participate in voluntary research studies in a secure and accessible way. The results of ArthritisPower studies are frequently published in peer-reviewed journals and presented at medical meetings in the United States and around the world. ArthritisPower Patient Governors serve as gatekeepers for researchers seeking access to registry data or soliciting the community to participate in unique, voluntary studies. To learn more and join ArthritisPower, visit ArthritisPower.org or, in Spanish, ArthritisPower.org.es.
CreakyJoints® is an international digital community for millions of arthritis patients and caregivers who seek education, support, advocacy and patient-centered research. We represent patients in English, Spanish and French through our popular social media channels, websites and 50 State Networkwhich includes more than 1,700 trained volunteer activists for patients, caregivers and healthcare providers.
Part of the Global Foundation for Healthy LivingCreakyJoints also has a patient-reported outcome registry called ArthritisPower® (ArthritisPower.org), which includes tens of thousands of consenting arthritis patients who follow their disease while volunteering to participate in peer-reviewed longitudinal and observational research. In addition to online and downloadable educational resources, CreakyJoints publishes numerous arthritis and chronic disease podcast series, available on all major streaming platforms, that provide both patient and provider perspectives. It also hosts PainSpot (PainSpot.org), a digital risk assessment tool for musculoskeletal conditions and injuries, and eRheum (eRheum.org), for telehealth and virtual care support. All programming is free, always. For more information, visit CreakyJoints.org.
Find us online:
Creaking joints: CreakyJoints.org
CreakyJoints Español: CreakyJoints.org.es
CreakyJoints Australia: CreakyJoints.org.au
CreakyJoints Canada: CreakyJoints.ca
Global Healthy Living Foundation: ghlf.org
Facebook: facebook.com/CreakyJoints & facebook.com/GlobalHealthyLivingFoundation
Twitter: @GHLForg, @CreakyJoints#CreakyCats
Instagram: @creaky_joints, @creakyjoints_aus, @creakyjoints_esp
TIC Tac: globalhealthylifefnd